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I like the idea for the site and admire your courage and goals.

For the actual design of the site: I've seen that style in use before. It's cute but I can't really stand the long spacing between the forum name  and the last post information.

The home link and the forum link lead to the exact same place so there's really no reason to have the home link at all. You can remove it by going to your board options and removing the link to your page.

I'd also suggest maybe installing an add-on for guides or articles or similar and writing out any information you can find on the subject. "What is Tourettes Syndrome?", "What complications it can have", "Living with Tourettes", etc... you can get a lot of info on it from Wikipedia or some other source. This way people with some questions about it can find the answers on your site.

Anyway, you have a nice start going. And I see 15 members now instead of 5 so congrats on the increase.